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The Hidden Cost of the Chronically Ill

The Hidden Cost of the Chronically Ill

As I type, I’ve been on and off hold, transferred back and forth, with my insurance company for exactly two hours. This time, they’ve denied coverage for Ella’s upcoming appointment with a pediatric neurologist. We’ve been waiting to establish...
Does Being Scared Make Me Weak?

Does Being Scared Make Me Weak?

Six months after I was supposed to have a follow-up appointment with a cardiologist, it was finally my turn. It had been pushed back by the office four times with four different reasons. In the meantime, I had a TIA and a stroke. All my doctors have been anxiously...
Testing, Testing, 1, 2, 3…

Testing, Testing, 1, 2, 3…

This is the update I’ve been waiting for: the one I get share good news. My body has turned a corner, and I can feel it. It began the day before my brother and his family arrived. I hoped and prayed it wasn’t just adrenaline, steroids, or wishful thinking....
Milestones and Millstones

Milestones and Millstones

Have you ever had so much to process that you felt numb? I just made it past the two-month mark of my stroke, and while there’s much to celebrate, so many other significant life events have happened that I’m having trouble being able to feel any of it....

A Time to be… Silly

The anticipation had been building for months. Every time my milestone birthday came to mind, I felt sad. By 40, surely I’d meet all the goals I’d set for my health. I never finished my graduate degree, had no career to speak of, and felt like I was...